Raising awareness for people diagnosed with CMT Charcot-Marie-Tooth Desiase
122
March 26, 2025
Gather around The Campfire with Emily Sullivan
We all want to feel like we belong, like we have a place in the world full of people we can connect with. Emily Sullivan struggled with CMT Type 1A, bullying in school and a sense of isolation until she watched the 1994 film Forrest Gump her first experience seeing a person with a disability succeed. On this episode join us on Emily's journey falling in love with films, navigating CMT to her discovery of Camp Footprint, to working on an upcoming documentary about Camp Footprint a summer camp for...
Guest: Emily Sullivan
116
Feb. 12, 2025
Rolling Through Romance with Vic and Jesse
Relationships can be complicated and take time to build, but through patience, communication, and determination beautiful relationships can blossom. On this episode join me, Victoria Berezovich and Jesse Bouchard as we roll through their journey as a disabled couple and the challenges that come with it. We discussed a variety of topics from navigating date activities while dealing with Cerebral Palsy and Charcot Marie Tooth Disease respectively, sports participation in Rugby, bowling and the spe...
Guests: Victoria Berezovich , Jesse Bouchard
98
Sept. 25, 2024
Branching Out with Victoria Berezovich
CMT or Charcot Marie Tooth Disease is a rare neurological genetic condition that affects 1 in every 2500 people or 15000 Canadians at the time of writing. Victoria Berezovich struggle with a number of challenges from trying to get a diagnosis of CMT to two spinal fusion surgeries to the mental challenge that people with all disabilities face finding individuals with similar who can support and understand us in our struggles. Join me on this episode as Victoria shares her story of meeting familie...
Guest: Victoria Berezovich
54
Nov. 1, 2023
Progress Not Perfection with Chelsea Layton
CMT Charcot-Marie-Tooth disease is a rare group of genetic disorders that affect the muscles in the arms and legs. While this a non fatal condition at this point in time surgery is the only proven treatment to improve the quality of life for those affected. Chelsea Layton has had more than a dozen surgeries on her legs thus far but despite the pain and periods of recovery Chelsea continues her passions from enjoying the great outdoors, to raising her daughter, and working as a Digital Communicat...
Guest: Chelsea Layton
21
Feb. 15, 2023
One in Three Million with Shelley Reid
Shelley Reid has always been resilient ever since the age ten having to care for her mother. both Shelley and her mother inherited a rare disorder CMT Charcot-Marie-Tooth Disease a genetic nerve disorder that wears away at the muscles and sensory nerve in the body this condition affects one in every 2500 people or 3 million worldwide. Despite the life long battle Shelley has ahead of her she continues to pursue her dreams as a content creator, Jujitsu practitioner, and CMT Ambassador. If you wou...
Guest: Shelley Reid