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The Sit Down Stand Out Show
Jan. 18, 2023

Be your Own Best Advocate with Sarah Sharp

Be your Own Best Advocate with Sarah Sharp
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Sarah Sharp was born with Spina Bifida A condition that requires multiple surgeries and doctors’ appointments as time goes by. Despite the challenges of living with Spina Bifida Sarah has gone on to use her life experiences to educate people about the importance of recognizing that just like snowflakes no two cases of disabilities are exactly alike. Follow along on Sarah's journey as she prepares along with her medical recruitment team as she prepares to go into her next surgery to get nerve damage repaired. Be sure to pick up your copy of Ability Therapy (Elf-help) where Sarah shares personal stories and offers advice on how anyone with a disability can live a meaningful life.



Until next time Keep Calm and Roll on.

Sarah SharpProfile Photo

Sarah Sharp

Author / Thanatologist / Advocate

As an accidental advocate for adults with Spina Bifida, I've spent the last four years of my life navigating uncharted territory into a world of medical malpractice, nerve damage, and loss of function. During this time, I've ventured to piece together a comprehensive medical team through research, networking, and travel. To share these hard-won insights, I recently created the Instagram page "ileosychronicity"; named for meaningful connections forged in the unexpected (in this case, the need for a life-changing ileostomy).

In Jan 2023, I will undergo my fourth major surgery in as many years - this time at the Cleveland Clinic - in the hopes of remedying the original damage done in 2018, once and for all. In doing so, I aim to inspire others to pick up the pieces and regain control over their lives in the face of seemingly insurmountable obstacles.

From total dependency on my family and social security disability to achieving a fulfilling career in clinical recruitment, my story has been one of balance, perseverance, and mental fortitude. And it's truly just beginning.